Rusteloze benen

Voor allerlei onderwerpen met vragen, informatie en discussie dat betrekking heeft op de ziekte van Lyme, maar dat niet bij de secties "Wetenschap" en "Medisch" past. Dus geen medische vragen.
Berichten: 4028
Lid geworden op: Di 23 Dec 2008 4:30

Rusteloze benen

Berichtdoor bamboe » Wo 2 Feb 2011 23:47

Ik ben in mijn beleving nu 4 jaar chronisch lymepatient: sinds 2007

Terugkijkend in mijn medisch dossier valt mij oa op dat ik rusteloze benen (RLS) had in 2000.

Omdat de rusteloze benen een neurologische aandoening is, dacht ik he... toch niet ook al weer een link met de lyme?!

toen vond ik dit ... ase/348430 artikel:

By Dr. Virginia S.
Medical Doctor

¨Restless Leg Syndrome As A Marker For Unsuspected Chronic Lyme Disease
Posted Sep 13 2008 4:31am

Objectives: Restless Legs Syndrome is characterized by a torturous sense of needing to move the reclining leg--a feeling that can not be denied by the sufferer. As it was more clearly understood that RLS is mediated by many neurologically related abnormalities, it was thought RLS might be provoked by the presence of known or unsuspected neuroborreliosis. A study was undertaken in and from an eastern Pennsylvania private psychiatric office to ascertain the likelihood of a Lyme/RLS connection in that area, highly endemic for infected deer ticks.

Method: Psychiatric patients who had been found to have previously unsuspected tick-borne diseases, primarily Lyme disease, were interviewed to ascertain the possibility of co-existent RLS. At the same time, a survey of the membership of an unrelated, local support group for known RLS sufferers was undertaken with the goal of locating people who were previously diagnosed or as yet possibly undiagnosed victims of chronic Lyme disease.

Results: Of the 66 chronically Lyme-infected psychiatric office outpatients, 20% described typical symptoms of Restless Legs Syndrome. They acknowledged RLS symptoms as causing excruciating distress to them. Some of these patients also had a related condition, Periodic Limb Movement Disorder, which is characterized by a jerking of the legs (or arms) during sleep. None was receiving usual dopamine agonist medications for treatment of RLS.

The situation in the totally unrelated RLS support group was different but also suggestive. In a survey of 150 members, approximately one third of whom responded, 50% described chronic non-RLS multi-system physical symptoms for which they could get no diagnosis after consulting multiple specialists. Of the 7 people who so far have allowed Western Blot and PCR testing, 5 tested positive for Lyme and, to some degree, other associated tick-borne infections. One other person apparently has lupus. There were 3 others who had past histories of treated LD.

The 5 RLS support group members who tested positive were relieved at the new diagnoses of chronic Lyme disease. Of the four of them to date who have allowed treatment for their infections, all have experienced reduction in their RLS, two no longer needing therapy other than iron supplements and antimicrobial medications.

In the psychiatric outpatient group, all the patients who underwent treatment for chronic Lyme disease lost their RLS and PLMD symptoms with the advent of appropriate antimicrobial medications and sans dopaminergics.

Conclusions: Experience with two unrelated sets of people--Lyme victims in treatment for emotional/cognitive problems and a cluster within a RLS support group indicates a likely role for Lyme disease as a causation of RLS.
« Prev First Symptoms Of Chronic Lyme Disease Often Are Psychiatric In Nature

Berichten: 310
Lid geworden op: Wo 20 Okt 2010 14:22
Locatie: arnhem

Re: Rusteloze benen

Berichtdoor marina-marina » Vr 4 Feb 2011 18:18

ik heb ook sinds mijn 18" rls!
dus nu 20 jaar!
ik heb daar AMITRIPTYLINE voor en moet zeggen dat het me heel goed helpt!


Berichten: 4028
Lid geworden op: Di 23 Dec 2008 4:30

Re: Rusteloze benen

Berichtdoor bamboe » Za 5 Feb 2011 12:15

Hoi Marina, ik heb je een pb-tje gestuurd hierover.
Maar 18 jaar lyme hebben al...
Of heb je het nog langer denk je?
Gecondoleerd meid...
Ik heb -terugkijkend- denk ik sinds ongeveer 20 jaar deze ziekte.

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