Unexpected Lessons I Learned from Life with Late Stage Lyme

Hier kan met andere forumleden worden gesproken over vanalles wat met Lyme of Lymepatiënten te maken heeft en niet bij andere forums past. Spreek je uit, geef tips, vraag om advies of hulp, etc.
Berichten: 4028
Lid geworden op: Di 23 Dec 2008 4:30

Unexpected Lessons I Learned from Life with Late Stage Lyme

Berichtdoor bamboe » Za 5 Jul 2014 21:07

Unexpected Lessons I Learned from Life with Late Stage Lyme:

1. Never leave the house without dye-free benadryl. Oh, and snacks.

2. When someone says “Hi, how are you?”, 98% of the time they are expecting a one word answer. Unless it’s your mom or your grandmother who’s asking. Then your answer requires no less than 125 words.

4. Don’t chew your Chlorella tablets. Even if the bottle says that you can. And if your doctor tells you that they taste like M&Ms, he’s a liar.

5. Moccasin slippers are a wise investment. When you accidentally forget to put on real shoes, people will be less likely to notice.

6. Laughing is really important. It brings us back to the moment and reminds us to exhale, and to use up less of our moments worrying about the future or grieving over the past. But it’s okay to cry sometimes. That’s important too.

7. You can’t juice a banana (just trust me).

8. If you consume carrot juice, quercetin, turmeric and vitamin C all in one day, you’ll wake up looking like you’ve had a bad spray tan. Don’t worry, it’ll fade.

9. It is indeed humanly possible to consume more than six servings of vegetables without it completely ruining your day. A vegetable rule of thumb—if you hate it, then roast it.

10. Sign up for Amazon Prime. When there’s only two pills left of your favorite supplement and you’ve forgotten to order more, 2-day shipping will be free (also good for chocolate flavored almond butter emergencies).

11. Then you’ll probably want to make friends with the mailman. It doesn’t hurt to get friendly with the UPS guy either.

12. If you want something to work, the first thing that you have to do is believe in it. The second step is to trust it, and the third is to commit to it until what you believed would happen becomes a truth.

13. A doctor, a teacher, a mentor or a healer can show you how to do it, but they can’t do it for you. You have to meet your guide halfway. It’s up to you to do the work.

14. If you’re going to sit in an infrared sauna, drink a lot of water before you get in, even if your bladder tells you otherwise. Don’t wear mascara.
15. Don’t let a closed door close your mind, or hard circumstances harden your heart. Staying open and gracious allows space for unexpected opportunities.

16. You are not The Hulk. Don’t start at full dose. Invest in a pill cutter, and for a while, decide whether or not it’s going to be a “little half” day or a “big half” day. Feel like a rock star when you pick the bigger half.

17. That inexplicable funny feeling that you sometimes get about things? It’s your intuition. Trust it. It’s smarter than your heart and less biased than your brain.

18. Don’t steam okra. Unless you’re into eating green banana slugs, then go for it.

19. For those mornings that you wake up feeling like you have a massive hangover (or if you really actually have a hangover, no judgment here), keep a bottle of peppermint oil next to your bed. Sometimes it’s the little things that can really shift a girl’s day.

20. Study ingredient labels like it’s your college major. And if you can’t pronounce it, don’t eat it.

21. If your shampoo or perfume would be toxic if you ate it, then you shouldn’t wear it.

22. Bring fruit and a baggy of sea salt with you to your blood draws—it’s one of the quickest ways to get your blood sugar and blood pressure back up. You never know when they’re going to go vampire on you and take a quarter of what’s in your veins.

23. Sometimes, when you feel impossibly sick, it’s best to go back to the basics. Your body might just need some breathing room.

24. Stop looking for the “right answer.” Pause for a moment, breathe, and let it come to you. The further you go searching for what may not be yours, the farther you get from what’s actually meant for you.

25. Make peace with your sweatpants. The world is lucky you got dressed.

26. You can never have too many blankets, pairs of pajama pants, epi-pens or extra rolls of toilet paper.
27. Hearts don’t actually break. They crack sometimes, but eventually you find your glue and that painful broken feeling subsides.

28. It’s a good idea to check your blood pressure before you attempt yoga…unless you feel like tasting your yoga mat.

29. Your body loves your gluten-free diet. Just give it some time to prove it to you.

30. The dishes will still be there in the morning.

31. When all else fails, call someone who loves you.

32. Try not to underestimate yourself. Your body may be somewhat unreliable, but your spirit isn’t.

33. Asking the question “Why me?” just proves to the Universe that you haven’t learned the answer yet, and nothing goes away until it teaches us what we need to know.

34. Even when you lose what you perceived to be “everything,” you’re still you.

35. You’re not just in the process of healing your body; you’re likely healing your life. Trust the evolution, and love the person that comes out on the other side.
http://www.elephantjournal.com/2014/07/ ... -mitchell/

Berichten: 4028
Lid geworden op: Di 23 Dec 2008 4:30

Re: Unexpected Lessons I Learned from Life with Late Stage L

Berichtdoor bamboe » Zo 6 Jul 2014 21:49

8. If you consume carrot juice, quercetin, turmeric and vitamin C all in one day, you’ll wake up looking like you’ve had a bad spray tan. Don’t worry, it’ll fade.

Dit doe ik elke dag: ik heb nergens last van verder.

Berichten: 47
Lid geworden op: Ma 9 Jun 2014 14:21

Re: Unexpected Lessons I Learned from Life with Late Stage L

Berichtdoor TakeThatTick » Di 8 Jul 2014 15:33

28. It’s a good idea to check your blood pressure before you attempt yoga…unless you feel like tasting your yoga mat.

Breathe in and breathe out..

Berichten: 4028
Lid geworden op: Di 23 Dec 2008 4:30

Re: Unexpected Lessons I Learned from Life with Late Stage L

Berichtdoor bamboe » Do 31 Jul 2014 22:37

So you have a friend or family member with chronic lyme disease
A Guide to understanding their struggle

It's never easy to understand what another person is going through no matter the cause. The saying holds true that you'll never truly know unless you walk a mile in their shoes. In the case of Chronic Lyme Disease, there is much to be understood by not only those who know someone with it, but the person battling it as well. Let it be known that this article is by no means a sympathetic appeal, but to give an honest voice of reason to the person battling Chronic Lyme Disease who can't always find the words to explain the complexities of their circumstances.

1. They're not crazy, they're not lazy, and it's not all in their head (pun intended)
This gravy train needs to stop. There has to come a point where reality takes hold and reality is that a highly evolved bacteria with lethal intent courses through the blood of a person with Chronic Lyme Disease; literally dismantling the human body in a malicious manner over an extended period of time until death becomes. That's reality. All other claims are a true reflection of a person's inability to reason effectively.

2. They're not stupid. They're under the influence
So you have the distinct pleasure of having a conversation with a person with Chronic Lyme Disease. Did you notice that they may not appear to be as smart or possess the ability to articulate words much like they used to? Were they not able to recall an obvious time or memory that you both shared? Did they come to a complete stop in the middle of conveying a thought? Don't worry, it's not them. Within their brain, there exists a bacteria releasing deadly toxins that are directly interfering with the nerve relapses of their central nervous system.

3. They're on a special diet
You may have the intent of asking a person with Chronic Lyme Disease to join you for a meal. Maybe even one that you cooked but not without your love, passion, and hard work. Here is the deal. If your meal or a place you intend to visit for food contains either gluten, dairy, or sugar, they can't eat it. They're on a diet designed to deprive their body of food that directly feeds the bacteria within their blood and provide the essential nutrients their body needs to allow their immune system to take hold. In a nut shell, they're trying to avoid adding more fuel to the fire here. Yes, this includes alcohol.

But no one is denying the food is just as delicious as the bacteria in their body is deadly.

4. They're not ignoring you. They're reeling
It's been a while since your friend or relative with Chronic Lyme Disease reached out to you. Let's be honest here, living in a constant state of mental and physical pain, accompanied by eccentric, uncontrollable, and unprecedented symptoms, with a life that came crashing down isn't really something to show for; especially when these truths are in their face at all times and can't be ignored. A person with Chronic Lyme Disease can't talk about a party they went to last night, or the degree they're majoring in at college, or the job they're working, or simply what they plan to do this weekend. You want to know what they're doing this weekend? Here's what they're doing. They're most likely laying in bed or on the couch, in a both physically and mentally ailing state, wondering time and time again why they happened to be the lucky person to contract such a life altering disease. Their aspirations have come to a complete stand still as their life now almost 100% of the time revolves around restoring it. Can't you just see how eager they are to talk about their life with you? They have nothing to impress you with.

Also consider that in addition to the reeling, a person with Chronic Lyme Disease more than likely may be experiencing what is know as floating, and more than likely is exhausted in attempting to explain what they're going through to members of their own species when they themselves don't have all the answers.

5. Yes, they had to leave their job or drop out of college; or both
If a person with Chronic Lyme Disease can't even carry on a simple conversation, how does one expect them to delve into the untouched matters of the universe in their college course or the physical demands of a job. Such societal demands require either an incredible amount of critical thought or physical energy, both of which a person with Chronic Lyme Disease lacks greatly. Chronic stress is usually a constant factor in college and work and it directly compromises the immune system. It's the last thing a person with Chronic Lyme Disease needs when they're aiming from every angle to remove a deadly bacterial infection. The ultimatum to leave college and/or work, even though it may be temporary, is never taken lightly by the heart.

6. Stop saying "Well you look healthy to me".
Unless you have both microscopic and magnetic resonance imaging (MRI) for eyes, all you can see is the delusional exterior perfectly concealing the destruction that is currently in effect under the skin of a person with Chronic Lyme Disease. A person doesn't need a visible wound to identify a debilitating physical and mental state of existence. You'll never find a person with Chronic Lyme Disease whose eyes constantly fall out of their socket because of their condition. Almost 100% of all the visible evidence needed to determine how severe or ill a person with Chronic Lyme Disease is resides within their interior. The debilitation can only be felt and truly understood by them.

7. Yes, they've been enduring it for many months or even years
Hopefully by now, you've made the rational decision to forget the ignorant notion that 3 weeks of antibiotics are all that is needed to remove Chronic Lyme Disease from the body. If not, you're going to have trouble understanding this one. From when the first symptom starts, until the day a person with Chronic Lyme Disease is in remission, many years may pass. Why is this you ask? Well it's very simple you see. Between a combination of doctors who abide by outdated medical standards, ambiguous symptoms, inaccurate and deceptive testing, and when finally a diagnosis is clinically agreed upon because testing failed time and time again, treatment alone for Chronic Lyme Disease will take a minimum of a year because of the highly evolved complexities of the bacteria and possible coinfections. The entire endeavor is no over night fix. It is the ultimate test of patience.

8. Treatment makes them feel worse
The idea that treatment for Chronic Lyme Disease causes a person to feel worse is almost counter intuitive, but only to the unreasoned brain. You see, every Lyme Disease treatment protocol must contain either a non bacteria-resisted antibiotic or a supplement of some kind that boosts the immune system in order to effectively eradicate the bacteria. Got it? Ok. Now when the Lyme Disease bacteria is killed by either the immune system or an antibiotic, toxins are released from the outer member of the bacteria, causing a person with the infection to feel 100x worse than your worst hangover; or worst flu if you don't drink. These endotoxins flood their internal organs and cause what is known as a herxheimer reaction within the body. If a person with Chronic Lyme Disease kills off too many of the Lyme bacteria in their body at once, the herxheimer reaction can become so severe that it can actually kill them.

For the record, the severity of their herxheimer reaction is a direct cause and reflection of their mental and physical state that day.

9. They don't have all the answers
It's human nature to inquire about a friend or family member whom you know is not feeling well. You yourself want to understand what is currently disrupting their health and if possible, help them along and expedite the healing process even if it's just by a few good words. When confronting a person with Chronic Lyme Disease for answers, you will find yourself leaving the confrontation with less knowledge than you had expected to leave with. The reason it that they don't have all the answers nor do they remember the few they have due to their faulty memory. This also includes a timely explanation of why their life is not adhering to the exceptions you may have had for them. They're currently struggling for truth and answers as they're not easy to find. Try not to make them feel like they owe you more than the truth.

10. They're not bipolar
If you find yourself around a person with Chronic Lyme Disease often, you'll notice that their mood or condition changes quite frequently. One day they're happy, feeling great or coming off quite intelligent, and the next day they're sad, depressed, irritable, or feeling physically horrible. Though these continuous fluctuations in a person with Chronic Lyme Disease may lead you to believe there is something else wrong. There isn't. This is actually quite normal because their bodies have been biologically hijacked by a highly evolved bacteria with the intent to kill and cease their biological function.
http://www.tiredoflyme.com/so-you-have- ... 5D768bzdLV

Terug naar “Lyme Café”

Wie is er online

Gebruikers op dit forum: Geen geregistreerde gebruikers en 0 gasten